Parkinson’s ZA, a non-profit charity, hosted an awareness walk in Durban to support patients, reduce stigma, and grow a nationwide support community. April is Parkinson’s Awareness Month in South Africa, dedicated to educating the public, reducing stigma, and supporting those affected by this progressive neurological illness.
To mark the occasion, Parkinson’s ZA – which provides workshops and rehabilitation for people living with Parkinson’s disease – organized Saturday’s walk (April 18), now in its fourth year.
Founding director of Parkinson’s ZA, Rakesh Harribhai, said, “Through this walk, Parkinson’s ZA aims to build a community of friends, families, and colleagues, an ecosystem for support for people who have PD, by offering multiple support options for everyone. We can only do it with the support of such a community, which we rely on to raise funds to make sure that all our workshops and support avenues are free of charge. We aim to improve the overall quality of life for the affected.” Aditi Shah and Shamini Kara strolling the bay as they show support for PD patients. The organisation, he said, has seen growth in its community, with 450 affected individuals and carers currently. Although it was established in Durban five years ago, Parkinson’s ZA has expanded its reach to Johannesburg and Cape Town.
Noted was a testimony of a 32-year-old patient, raising a reality of the changing face of PD, as it is normally associated with people over the age of 60.
Parkinson’s disease is a degenerative neurological illness that affects movement and causes tremors, stiffness, or slowness. It develops when brain cells that produce dopamine stop functioning properly. The origins of the disease are linked to genetics, and its effects vary from person to person. Although it is most commonly diagnosed in older adults, younger individuals can also be affected.
Parkinson’s ZA is a dedicated NGO focused on challenging stereotypes surrounding PD. The awareness walk is an inspiring initiative that not only encourages healthy exercise but also raises the profile of Parkinson’s ZA and highlights the important work it has accomplished. The walk aims to shed light on the psychological struggles faced by people living with PD while also promoting research into treatment. As a pillar of the health community, Parkinson’s ZA needs all the support it can receive. Raising awareness of symptoms and rehabilitation is only the beginning.
For example, a 32‑year‑old patient shared their experience with PD, emphasizing that the more individuals speak openly about their symptoms, the greater the understanding and awareness within society.
The walk culminated in an informative programme with medical specialists affording the affected community to ask questions and receive much-needed clarity on some misconceptions, and interventions around PD.
To join or support the Parkinson’s ZA community call 083 258 3604, email hello@parkinsonsza.org or visit www. parkinsonsza.org.
Progress is being made in this struggle, and how it unfolds will determine the future of medical treatment for Parkinson’s disease. Research into treatment – or even a cure –will not be enough. Medical research requires significant support and trust to succeed.
From a genetic perspective, seeking professional medical advice at a young age, particularly when the disease is known to be prevalent in the family, should be a priority. Spreading awareness about the effects and risks of Parkinson’s disease through education and social media can make a meaningful difference.
Article written by:
Yacoob Cassim
Journalist at Radio Al Ansaar
